How many hemophilia treatment centers are there in the US?

Hemophilia Treatment Centers (HTCs) Today, there are about 141 federally funded treatment centers and programs across the country.

What organizations help with hemophilia?

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for bleeding and clotting disorders through education, advocacy, and research. The Hemophilia Federation of America (HFA) is a national nonprofit organization that assists and advocates for the bleeding disorders community.

How are hemophilia treatment centers funded?

The CDC Division of Blood Disorders provides funding for several programs including ones that support research, surveillance, and prevention for bleeding and clotting disorders including hemophilia.

How do you stop bleeding from hemophilia?

1. First, control the bleeding:

  1. Apply pressure with sterile gauze, a bandage, or a clean cloth.
  2. Place another bandage over the first if blood soaks through the bandage, and continue to apply pressure.
  3. Raise the injured body part to slow bleeding.

How much does it cost to treat hemophilia?

Treatment for hemophilia is extremely expensive. This is a lifetime expense. The average cost is $40,000 to $50,000 a year. Complications from hemophilia can bring further expenses, which may be over $100,000.

What is an HTC hemophilia?

Often the best choice is a comprehensive hemophilia treatment center (HTC). HTCs are specialized health care centers that bring together a team of doctors, nurses, and other health professionals experienced in treating people with hemophilia.

What local resources are available for someone suffering from hemophilia?

Get in touch with your local National Hemophilia Foundation (NHF) chapter. Use the NHF chapter finder to connect with others in your area who are affected by a bleeding disorder as well as with people who are working to improve the lives of those living with bleeding disorders.

Which type of hemophilia is more severe?

Hemophilia A affects 1 in 5,000 to 10,000 males. Hemophilia B is less common, affecting 1 in 25,000 to 30,000 males. Around 60% to 70% of people with hemophilia A have the severe form of the disorder and about 15% have the moderate form. The rest have mild hemophilia.

How much does hemophilia cost?

Is there a cure coming soon for hemophilia A?

There is currently no cure for hemophilia, a rare bleeding disorder.

Why is treatment for hemophilia so expensive?

Not only do prices rise steadily as each new product comes on the market, demand is growing — and pushing costs upward — as more and more clotting factor is used to prevent bleeding episodes, not just to treat them.

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